Keeping Kids on the Move

Seventeen children received adaptive tricycles from the Emily Ann Griffin Foundation, including the children listed below. We would like to thank Rifton Equipment for offering us a substantial discount on all the tricycles we purchase:

Brendyn, age 4, who has Cerebral Palsy

Shimon, age 12, who has Down Syndrome

Luke, age 8, who has Moebius Syndrome, low tone, has a tracheostomy and is on a ventilator

Matthew, age 14, who has low muscle tone

Jack, prefers to keep diagnosis private

Kyla, age 8, who has Angelman’s Syndrome

Zachariah, age 9has Down Syndrome

Alizay, age 9, has Arthrodiposis and Martin, age 10, have Cerebral Palsy. Both of their families needed assistance purchasing an adaptive van. The Emily Ann Griffin Foundation was able to contribute the remaining funds needed to make this possible.

Nathan, age 6, has Cerebral Palsy. Nathan’s family requested a portable wheel chair ramp for their van. The Emily Ann Griffin Foundation was able to provide this needed piece of equipment.

Emma, age 7, has Hydrocephalus. Her family requested a special stroller which the foundation was happy to purchase for her.

Farah, who has Cerebral Palsy also needed a special stroller.

Colin has SMA. His family requested a smaller, more portable wheel chair to use for family outings. The Emily Ann Griffin Foundation was to be able to purchase this wheelchair for them.

Anthony, age 3, has Down Syndrome. He needed special braces for his feet called SMO’s. These braces allow for extra support while walking. The Emily Ann Griffin Foundation was happy to cover the cost of these expensive braces.

Jeremiah has Goldenhar Syndrome and Cerebral Palsy. He was unable to safely ride a bike on his own, even a special adaptive tricycle. The Emily Ann Griffin foundation purchased a tandem bike for the family. Now Jeremiah can accompany his family on bike rides.

Aaliyah, age 4, has a heart defect and epilepsy. Her family requested assistance in building a ramp, The Emily Ann Griffin Foundation was happy to help.

Delila, age 3, suffers from the effects of Shaken Baby Syndrome. Her adoptive parents were having difficulty carrying her up and down the porch steps. The Emily Ann Griffin Foundation provided the family with a porch lift. A porch lift is used when there is not enough room for a ramp. Thank you Bongero Construction for assisting us with this project.

Ezra, age 5, has Encephalopathy. The Emily Ann Griffin Foundation purchased a special scooter chair to help Ezra get around.

Mohamid has Cerebral Palsy and needed a wheel chair. The family did not have insurance to cover this cost. The Emily Ann Griffin Foundation was happy to purchase this much needed wheelchair.

Ashley, age 15, has a rare genetic neurologic disorder named CDKL5. The Emily Ann Griffin Foundation was able to contribute the remaining funds needed to purchase an adaptive van.