Keeping Kids on the Move

As their children get older and grow, families have increasing difficulty carrying their children up and down the stairs to enter and exit their home. Thanks to you, our wonderful supporters, the following kids received accessibility ramps: Prevnav, age 10, who has Cerebral Palsy; Hussein, age 13, who has Cerebral Palsy; Francis, age 16, who has Muscular Dystrophy; and
Gideon, age 7, who is paralyzed.

Deangelo, age 6 and Leo, age 5, both needed more support to assist with walking and their therapist contacted the foundation to request special suits called Theratogs. Again, the foundation was able to grant these requests.

Morgan, age 8, who has Cerebral Palsy and seizures, received a Taos Orthotic to maintain proper alignment which assists with walking.

Every year, we receive many calls from therapists and teachers telling us their students enjoy riding adaptive tricycles at school and therapy while at the same time receiving wonderful health benefits such as strengthening muscles, increasing range of motion of joints and a feeling of accomplishment—all while playing. Thanks to Rifton Equipment who gives our foundation a huge discount on every bike we purchase. Thanks also to you! Because of your generous donations, the following kids received adaptive tricycles of their own: Lucian, age 6, who has Down Syndrome; Lester; Carson; Preston, age3, who has Pelizaeus Mertzbacher Type 2 Leukodystrophy; Noah, age 13, who has Autism;  Emma, age 7, who has Kabuki Syndrome, Epilepsy and Autism; Alexander, age 11, who has Cerebral Palsy; Luke, age 5, who has Cerebral Palsy; Timothy, age 16, who has Cerebral Palsy; Elijah, age 6, who has Hemiplegia due to a brain hemorrhage at birth; and Matthew, age 6 who has Spina Bifida.

The foundation also purchased two adaptive tricycles to be used at Bovensch Special Ed. They had a limited number of bikes and many kids who want to ride.

The Emily Ann Griffin Foundation will occasionally receive requests for the purchase of a double stroller for kids who are dependent on a ventilator to breathe. Morgan, age 1 who has Bronchopulmonary Dysplasia and Pulmonary Hypertension as well as Annabelle and Addyson, age 4, who have Leigh’s Disease received strollers.

Ezra, age 5, had encephalopathy and his therapist requested a scooter chair to assist with his mobility. The Emily Ann Griffin Foundation was happy to provide this for Ezra.

Mason, age 3, has Cerebral Palsy and is blind. His family worked with multiple foundations to purchase a wheelchair accessible van. The Emily Ann Griffin Foundation was happy to be a part of this purchase.

Ghazali, age 5, has Congenital Myopathy. Ghazali’s therapist contacted us to see if we could purchase a wheelchair for her. Because of our wonderful donors, we were able to say yes to this request.

Makenzie, age 5, has Cerebral Palsy and Dandy Walker Syndrome. Kendric, age 3, suffered from anoxic brain injury at birth. Scarlet, age 1, has Epilepsy. All three received adaptive strollers from the Emily Ann Griffin Foundation.

Adaptive strollers are expensive and occasionally need new parts, The Emily Ann Griffin Foundation purchased replacement parts for Harper, age 2 and Sophie, age 4.

Kanye, age 8, suffers from kidney failure. The family needed some minor car repairs that they were not able to afford. It is imperative that Kanye be able to attend his medical appointments, so The Emily Ann Griffin Foundation paid for the car repairs.

Naomi has Cerebral Palsy and is unable to stand or walk without assistance. She was using a Rabbit Walker at therapy with great success. Naomi’s therapist contacted the foundation to see if it was possible to get a Rabbit Walker for Naomi to use at home. Yes, it was possible thanks to your donations!