A Smile From Heaven

News and Information from the Emily Ann Griffin Foundation – 2017

Thanks to the generosity of our supporters, The Emily Ann Griffin Foundation has helped many children and families this year. We appreciate your continued support. Your donations have touched the lives of many children and their families. Here are some of their stories.

Helping Kids Communicate

Ahmed, age 9, has Cerebral Palsy and a seizure disorder. His family requested a ramp to allow them to safely come and go from their home.

Clair, age 3, suffered from hearing loss and received cochlear implants. The Emily Ann Griffin Foundation was able to assist with the cost of speech therapy as Clair adjusted to her implants and improved her ability to speak.

Divine, age 2, has Cerebral Palsy and Anthony, age 2 has Muscular Dystrophy. They both needed a special piece of equipment called a Z-Grabber that will assist in developing the muscles needed for speech.

Daniel, age 7 and Joe, age 9 both have a sensory processing disorder and traumatic brain injury. Both received I-Pads from The Emily Ann Griffin Foundation to assist them with communicating.

Reese, age 5, suffers from hearing loss. The Emily Ann Griffin Foundation purchased an FM system which greatly improves her hearing at school and at home.

Brayden has hearing loss so The Emily Ann Griffin Foundation purchased a set of hearing aides for him.

Keeping Kids on the Move

Seventeen children received adaptive tricycles from the Emily Ann Griffin Foundation, including the children listed below. We would like to thank Rifton Equipment for offering us a substantial discount on all the tricycles we purchase:

Brendyn, age 4, who has Cerebral Palsy

Shimon, age 12, who has Down Syndrome

Luke, age 8, who has Moebius Syndrome, low tone, has a tracheostomy and is on a ventilator

Matthew, age 14, who has low muscle tone

Jack, prefers to keep diagnosis private

Kyla, age 8, who has Angelman’s Syndrome

Zachariah, age 9has Down Syndrome

Alizay, age 9, has Arthrodiposis and Martin, age 10, have Cerebral Palsy. Both of their families needed assistance purchasing an adaptive van. The Emily Ann Griffin Foundation was able to contribute the remaining funds needed to make this possible.

Nathan, age 6, has Cerebral Palsy. Nathan’s family requested a portable wheel chair ramp for their van. The Emily Ann Griffin Foundation was able to provide this needed piece of equipment.

Emma, age 7, has Hydrocephalus. Her family requested a special stroller which the foundation was happy to purchase for her.

Farah, who has Cerebral Palsy also needed a special stroller.

Colin has SMA. His family requested a smaller, more portable wheel chair to use for family outings. The Emily Ann Griffin Foundation was to be able to purchase this wheelchair for them.

Anthony, age 3, has Down Syndrome. He needed special braces for his feet called SMO’s. These braces allow for extra support while walking. The Emily Ann Griffin Foundation was happy to cover the cost of these expensive braces.

Jeremiah has Goldenhar Syndrome and Cerebral Palsy. He was unable to safely ride a bike on his own, even a special adaptive tricycle. The Emily Ann Griffin foundation purchased a tandem bike for the family. Now Jeremiah can accompany his family on bike rides.

Aaliyah, age 4, has a heart defect and epilepsy. Her family requested assistance in building a ramp, The Emily Ann Griffin Foundation was happy to help.

Delila, age 3, suffers from the effects of Shaken Baby Syndrome. Her adoptive parents were having difficulty carrying her up and down the porch steps. The Emily Ann Griffin Foundation provided the family with a porch lift. A porch lift is used when there is not enough room for a ramp. Thank you Bongero Construction for assisting us with this project.

Ezra, age 5, has Encephalopathy. The Emily Ann Griffin Foundation purchased a special scooter chair to help Ezra get around.

Mohamid has Cerebral Palsy and needed a wheel chair. The family did not have insurance to cover this cost. The Emily Ann Griffin Foundation was happy to purchase this much needed wheelchair.

Ashley, age 15, has a rare genetic neurologic disorder named CDKL5. The Emily Ann Griffin Foundation was able to contribute the remaining funds needed to purchase an adaptive van.

Keeping Kids Healthy (and Happy)

Sometimes families need assistance purchasing nutritional supplements and other items needed to keep their kids healthy:

Harper is 18 months old and has Mitochondrial Disease. Her family needed assistance purchasing a special formula.

Angela, age 3, has Cerebral Palsy. Angela’s family needed assistance with purchasing Pedialyte.

Andrew, age 13, has Muscular Dystrophy. His family needed assistance in purchasing special formula. Angel’s family needed assistance purchasing Ensure for their daughter. Nathan, age 6, has Autism. His mom needed assistance purchasing pull ups while he continues to try to master potty training.

Devon, age 4, has Autism and a severe oral aversion requiring the placement of a feeding tube. The Emily Ann Griffin Foundation purchased a Blend-Tech blender to enable the family to tube feed Devon healthy foods.

Mekhi, age 2, has tracheomalacia and sleep apnea. Mekhi’s doctor felt that a window air conditioning unit would keep Mekhi more comfortable during the summer months. The Emily Ann Griffin Foundation purchased an air conditioning unit for her.

Antonio and Mason both have Autism, their families requested some sensory equipment for them which the foundation was happy to purchase.

Jorden, age 6, suffers from Rett’s Syndrome. Due to tremors, Jorden has difficulty eating. The Emily Ann Griffin Foundation purchased a special self-leveling spoon to assist with eating.

Johan, age 2, has congenital cataracts and suffers from infantile spasms. His teacher requested a baby swing for home use to help sooth Johan.

Preethi, age 4, has Cerebral Palsy. Preethi needed multiple pieces of equipment to assist her in her home. The Emily Ann Griffin Foundation was able to purchase all the equipment she needed.

Jase, age 3, has Krabbe Disease which is a progressive disorder of the nervous system. Jase’s family needed to purchase a special respiratory vest but was not able to afford it. The Emily Ann Griffin Foundation was able to purchase this item for Jase.

Sending Kids to Camp

The following children received financial assistance to attend camp last summer:

Gavin, age 12, who has Cerebral Palsy

Franco  who has Cerebral Palsy

Mohamed, age 8, has Autism

Maeve, age 11, who has Spastic Quadriplegia Cerebral Palsy

Keeping Kids Safe

Mekayla, age 17, has Lennonx-Gastaut Syndrome and Autism. The Emily Ann Griffin Foundation provided bed rails and a motion sensor to keep her safe when she has a seizure at night.

Addyson, age 2, has Leigh’s Disease. Her family requested a special supportive car seat to keep her safe while traveling.

Zoey, age 3, has Sturge-Webber Syndrome and Epilepsy. The Emily Ann Griffin Foundation purchased a special bath chair to provide the family with a safe option for bathing Zoey.

Johnny, age 3 and Asher, age 2, both received a “Splashy”. A “Splashy” provides extra support when bathing a child and can also be taken and used at the beach on family vacations.

Caden, age 3, has Spina Bifida and Hydrocephaly. The Emily Ann Griffin Foundation purchased a shower chair, so his family can safely bath him.

Seating Assistance

Anthony, age 2, has Cerebral Palsy. The Emily Ann Griffin Foundation purchased a P- Pod Postural Support System for him. A P-Pod Postural Support System is the perfect alternative seating solution and it is light and portable.

Evelyn, age 2, suffers from Hypoxic Ischemic Encephalopathy. And as a result, Evelyn suffers from neurologic overstimulation and is difficult to comfort. The Foundation purchased a Babocush for her. This special piece of equipment allows for swaddling with gentle vibration, a rhythmic heart beat and a rocking or swaying motion.

Titan, age 3, has Cerebral Palsy. The foundation purchased a supportive chair and tray system to allow him to sit up with support and more easily engage in his environment.

Kaleigh, age 1, suffers from an undiagnosed neurologic disorder that makes it very difficult to comfort her. The family needed a special baby swing, which the foundation purchased.

Thank You… to Area Businesses and Special Friends for their On-going Support

On April 18, The Emily Ann Griffin Foundation (along with three other worthy organizations) was given the opportunity to present to the Plymouth Canton Women’s Giving Circle. The Giving Circle provides assistance to organizations that address the needs of women and families in the greater Canton and Plymouth areas. Each organization at the April 18 meeting was given the opportunity to talk about their groups and how they positively impact the lives of women and families in our area. After the presentations, members of the Giving Circle donate $100 and vote on which organization should receive the donated funds. The Emily Ann Griffin Foundation was thrilled to receive the collected funds totalling more than $6300. Thank you to the Plymouth Canton Women’s Giving Circle and to all who donated. (At press time, we were unable to list the individuals who donated. These names will be included in our next newsletter.)

The Ann Arbor Star Chapter 317 Annual Heritage Ride once again raised money for The Emily Ann Griffin Foundation. This wonderful motorcycle group has raised over $27,000 for the Emily Ann Griffin Foundation

The Plattsburgh High School National Honor Society raised $800.00 for The Emily Ann Griffin Foundation.

The Livonia Bar Association donated the proceeds from their Annual Golf Outing to The Emily Ann Griffin Foundation.

The Emily Ann Griffin Foundation was a recipient of a grant from Eagles For Children. This is a wonderful foundation that participating country clubs join in each golf season. Golfers pledge a dollar amount for every eagle recorded at their respective club during the season. Meadowbrook Country Club gifted our foundation with $4,575.00. Thank you Dan and Janet Doyle for sponsoring The Emily Ann Griffin Foundation!

Each year the Chelsea Classic Cruisers host a car show and donate a portion of their proceeds to a local charity. This year they honored The Emily Ann Griffin Foundation with their donation.

The Emily Ann Griffin Foundation is now one of the charitable organizations participating in the Charity Motors, Inc. Car Donation Program. Donate your used car and designate the Emily Ann Griffin Foundation to receive the proceeds from the sale of your car. Please Call Charity Motors at 1-888-908-CARS. Thank you to Lew and Molly Newcomb for designating The Emily Ann Griffin Fiundation to receive the proceeds from the donation of their car to Charity Motors.

Thank you once again to Doyle and Associates for helping us apply for CFC funding and for providing our accounting needs.

KEEPING KIDS COMMUNICATING

DESIREE is an 18-year-old young lady who has bilateral hearing loss. The Emily Ann Griffin Foundation was able to purchase a pair of hearing aids which will assist Desiree when she goes off to college next year.

MICHAEL, age 6, has hearing loss. The Foundation provided him with hearing aids.

CLAIR, age 3, has hearing loss and cochlear implants. The Foundation provided speech therapy.

ELIZABETH, age 17, was premature and developed subsequent hearing loss. The Foundation provided Elizabeth with new updated hearing aids.

SAM, age 3, has bilateral hearing loss. The Foundation provided him with an FM system to assist with hearing at school and in the home.

WYATT, age 4, has bilateral hearing loss. He also received an FM system.

JONATHON, age 4, has conductive hearing loss in his left ear. The Foundation provided a hearing aid for him.

PAIGE, age 10, has sensory hearing loss. The Foundation provided hearing aids for her.

LOGAN, age 4, has a sensory processing disorder. The Foundation paid for special testing to allow his care team to tailor their treatments to his needs

CHASE, age 10, has Downs Syndrome. His request was for technology to assist him with his communication.

KEEPING KIDS ON THE MOVE

HUTZEL HOSPITAL contacted The Emily Ann Griffin Foundation to request special car beds so families of premature babies could borrow them for a safe ride home at discharge. We were able to purchase three car beds for them.

For sun protection, three stroller canopies were purchased for RYAN, age 15, who was born missing a portion of his brain, CONNOR, age 5, who has Mitochondrial Disease and Diautonomia and for JORDYNN, age 3.


NYASIA, age 16, has Cerebral Palsy and is confined to her wheelchair. Her family requested a ramp to allow them to safely come and go from their home.

HENRY and JUNIPER, age 8, are twins with Autism. Their request was for a therapy dog to help ease their anxiety while navigating out in public.

DELILA, 15 months old, was shaken as a baby. Her adoptive family requested a play pack portable positioner to allow Delila to be comfortably positioned when away from home. The Foundation also provided much needed arm braces for her.

ANNABELLE, age 3, and ADDISON, age 1, are sisters who have Leigh’s Disease. Neither are walking and both have feeding tubes. Their mom requested a double stroller so that she could leave the house with both children.

The following children received adaptive tricycles from the Emily Ann Griffin Foundation:

– KYLE, age 18, who has Prader Willli Syndrome
– JOSE, age 13, also has Prader Willli Syndrome
– WYATT, age 7, was born without abdominal muscles
– AARON, age 6, has Cerebral Palsy
– LUCAS, age 7, has Cerebral Palsy
– MOHAMMED, age 4, low tone and Congenital Scoliosis
– XAVIER, age 7, has Epidermolysis Bullosa

ADRIANNA’S family needed a handicapped-accessible van. The Emily Ann Griffin Foundation was able to contribute the remaining funds to make this possible.

TRINITY, age 15, was born with a rare unnamed syndrome causing multiple issues. Trinity is also a double amputee. His family requested a wheelchair lock down mechanism for their van.


CADEN, age 2, was born with Hydrocephaly, commonly known as fluid on the brain. Caden needed a special car seat to accommodate his needs. The Foundation was able to purchase this for him.

KEEPING KIDS HEALTHY (AND HAPPY)

DANIEL, age 3, has a blood disorder and was a recipient of a bone marrow transplant. Daniel is also developmentally delayed. The Foundation was able to assist the family in paying the expensive co-pays for the many medications Daniel must take.

CASSIE has Autism. Her family needed assistance paying for the art classes that Cassie loves and benefits from socially.

IAN, age 9, has Autism and is non-verbal. The Emily Ann Griffin Foundation provided funding for therapy.

MONTANA, age 17, greatly benefits from the horse back riding therapy that the Foundation was able to purchase.

ISABELLA, age 7, has Autism. Her mom requested and the Foundation provided sensory toys.

KOLTON is 6 months old and suffered from Plageocephaly. The family requested a special helmet to allow for proper skull growth and brain development.

KAMSI is paralyzed and requested a stander to be used at home.

LILY has Cerebral Palsy and Dystonia. The Foundation provided funding for special therapy.


GAVIN, age 3, has Hypotonia, Epilepsy, and is paralyzed on one side of his body. His family requested a potty chair and an activity chair.

BRYAN, age 4, has Cerebral Palsy and is blind. Because it is diffiCult to find ways to engage Bryan, his family requested a “Little Room” which is a little space filled with many sensory objects. This room provides the much-needed stimulation for Bryan.

AIRE, age 10, has Cerebral Palsy and needed assistance being moved when in his home. The Emily Ann Griffin Foundation provided his family with a lift system.

ETHAN, age 6, has Cerebral Palsy and DEMITRICE, age 2, has Semi Lobar Holoprosencephaly. Their families were having difficulty buying diapers. The Foundation was happy to supply them with several months worth of diapers.