A Smile From Heaven

News and Information from the Emily Ann Griffin Foundation – 2019

Thanks to the generosity of our supporters, The Emily Ann Griffin Foundation has helped many children and families this year. We appreciate your continued support. Your donations have touched the lives of many children and their families. Here are some of their stories.

Keeping Kids on the Move

As their children get older and grow, families have increasing difficulty carrying their children up and down the stairs to enter and exit their home. Thanks to you, our wonderful supporters, the following kids received accessibility ramps: Prevnav, age 10, who has Cerebral Palsy; Hussein, age 13, who has Cerebral Palsy; Francis, age 16, who has Muscular Dystrophy; and
Gideon, age 7, who is paralyzed.

Deangelo, age 6 and Leo, age 5, both needed more support to assist with walking and their therapist contacted the foundation to request special suits called Theratogs. Again, the foundation was able to grant these requests.

Morgan, age 8, who has Cerebral Palsy and seizures, received a Taos Orthotic to maintain proper alignment which assists with walking.

Every year, we receive many calls from therapists and teachers telling us their students enjoy riding adaptive tricycles at school and therapy while at the same time receiving wonderful health benefits such as strengthening muscles, increasing range of motion of joints and a feeling of accomplishment—all while playing. Thanks to Rifton Equipment who gives our foundation a huge discount on every bike we purchase. Thanks also to you! Because of your generous donations, the following kids received adaptive tricycles of their own: Lucian, age 6, who has Down Syndrome; Lester; Carson; Preston, age3, who has Pelizaeus Mertzbacher Type 2 Leukodystrophy; Noah, age 13, who has Autism;  Emma, age 7, who has Kabuki Syndrome, Epilepsy and Autism; Alexander, age 11, who has Cerebral Palsy; Luke, age 5, who has Cerebral Palsy; Timothy, age 16, who has Cerebral Palsy; Elijah, age 6, who has Hemiplegia due to a brain hemorrhage at birth; and Matthew, age 6 who has Spina Bifida.

The foundation also purchased two adaptive tricycles to be used at Bovensch Special Ed. They had a limited number of bikes and many kids who want to ride.

The Emily Ann Griffin Foundation will occasionally receive requests for the purchase of a double stroller for kids who are dependent on a ventilator to breathe. Morgan, age 1 who has Bronchopulmonary Dysplasia and Pulmonary Hypertension as well as Annabelle and Addyson, age 4, who have Leigh’s Disease received strollers.

Ezra, age 5, had encephalopathy and his therapist requested a scooter chair to assist with his mobility. The Emily Ann Griffin Foundation was happy to provide this for Ezra.

Mason, age 3, has Cerebral Palsy and is blind. His family worked with multiple foundations to purchase a wheelchair accessible van. The Emily Ann Griffin Foundation was happy to be a part of this purchase.

Ghazali, age 5, has Congenital Myopathy. Ghazali’s therapist contacted us to see if we could purchase a wheelchair for her. Because of our wonderful donors, we were able to say yes to this request.

Makenzie, age 5, has Cerebral Palsy and Dandy Walker Syndrome. Kendric, age 3, suffered from anoxic brain injury at birth. Scarlet, age 1, has Epilepsy. All three received adaptive strollers from the Emily Ann Griffin Foundation.

Adaptive strollers are expensive and occasionally need new parts, The Emily Ann Griffin Foundation purchased replacement parts for Harper, age 2 and Sophie, age 4.

Kanye, age 8, suffers from kidney failure. The family needed some minor car repairs that they were not able to afford. It is imperative that Kanye be able to attend his medical appointments, so The Emily Ann Griffin Foundation paid for the car repairs.

Naomi has Cerebral Palsy and is unable to stand or walk without assistance. She was using a Rabbit Walker at therapy with great success. Naomi’s therapist contacted the foundation to see if it was possible to get a Rabbit Walker for Naomi to use at home. Yes, it was possible thanks to your donations!

Keeping Kids Healthy (and Happy)

Asher receives his nutrition through a g-tube and the family requested assistance with purchasing specialized blended food. The Emily Ann Griffin Foundation was able to provide three months of nutrition during a difficult time for the family.

Nutritional support was also provided for Samir, age 6, who has Neurofibromatosis Type 1; Shawn, age 1, who has Holoprosencephaly; and Mohamas, age 9, who has Spastic Quadriplegia Cerebral Palsy.

Helping Kids Communicate

Semajay, age 11, has Cerebral Palsy and has difficulty with communicating. His occupational therapist requested and received an i-Pad with a special application to assist with communication and foster independence.

Josiah, age 3, has hearing loss and the foundation purchased a Roger Mike for him to use at home to be able to clearly hear his parents. Alexia, age 9, received hearing aids.

Helping Kids Communicate

Ahmed, age 9, has Cerebral Palsy and a seizure disorder. His family requested a ramp to allow them to safely come and go from their home.

Clair, age 3, suffered from hearing loss and received cochlear implants. The Emily Ann Griffin Foundation was able to assist with the cost of speech therapy as Clair adjusted to her implants and improved her ability to speak.

Divine, age 2, has Cerebral Palsy and Anthony, age 2 has Muscular Dystrophy. They both needed a special piece of equipment called a Z-Grabber that will assist in developing the muscles needed for speech.

Daniel, age 7 and Joe, age 9 both have a sensory processing disorder and traumatic brain injury. Both received I-Pads from The Emily Ann Griffin Foundation to assist them with communicating.

Reese, age 5, suffers from hearing loss. The Emily Ann Griffin Foundation purchased an FM system which greatly improves her hearing at school and at home.

Brayden has hearing loss so The Emily Ann Griffin Foundation purchased a set of hearing aides for him.

Keeping Kids on the Move

Seventeen children received adaptive tricycles from the Emily Ann Griffin Foundation, including the children listed below. We would like to thank Rifton Equipment for offering us a substantial discount on all the tricycles we purchase:

Brendyn, age 4, who has Cerebral Palsy

Shimon, age 12, who has Down Syndrome

Luke, age 8, who has Moebius Syndrome, low tone, has a tracheostomy and is on a ventilator

Matthew, age 14, who has low muscle tone

Jack, prefers to keep diagnosis private

Kyla, age 8, who has Angelman’s Syndrome

Zachariah, age 9has Down Syndrome

Alizay, age 9, has Arthrodiposis and Martin, age 10, have Cerebral Palsy. Both of their families needed assistance purchasing an adaptive van. The Emily Ann Griffin Foundation was able to contribute the remaining funds needed to make this possible.

Nathan, age 6, has Cerebral Palsy. Nathan’s family requested a portable wheel chair ramp for their van. The Emily Ann Griffin Foundation was able to provide this needed piece of equipment.

Emma, age 7, has Hydrocephalus. Her family requested a special stroller which the foundation was happy to purchase for her.

Farah, who has Cerebral Palsy also needed a special stroller.

Colin has SMA. His family requested a smaller, more portable wheel chair to use for family outings. The Emily Ann Griffin Foundation was to be able to purchase this wheelchair for them.

Anthony, age 3, has Down Syndrome. He needed special braces for his feet called SMO’s. These braces allow for extra support while walking. The Emily Ann Griffin Foundation was happy to cover the cost of these expensive braces.

Jeremiah has Goldenhar Syndrome and Cerebral Palsy. He was unable to safely ride a bike on his own, even a special adaptive tricycle. The Emily Ann Griffin foundation purchased a tandem bike for the family. Now Jeremiah can accompany his family on bike rides.

Aaliyah, age 4, has a heart defect and epilepsy. Her family requested assistance in building a ramp, The Emily Ann Griffin Foundation was happy to help.

Delila, age 3, suffers from the effects of Shaken Baby Syndrome. Her adoptive parents were having difficulty carrying her up and down the porch steps. The Emily Ann Griffin Foundation provided the family with a porch lift. A porch lift is used when there is not enough room for a ramp. Thank you Bongero Construction for assisting us with this project.

Ezra, age 5, has Encephalopathy. The Emily Ann Griffin Foundation purchased a special scooter chair to help Ezra get around.

Mohamid has Cerebral Palsy and needed a wheel chair. The family did not have insurance to cover this cost. The Emily Ann Griffin Foundation was happy to purchase this much needed wheelchair.

Ashley, age 15, has a rare genetic neurologic disorder named CDKL5. The Emily Ann Griffin Foundation was able to contribute the remaining funds needed to purchase an adaptive van.

Keeping Kids Healthy (and Happy)

Sometimes families need assistance purchasing nutritional supplements and other items needed to keep their kids healthy:

Harper is 18 months old and has Mitochondrial Disease. Her family needed assistance purchasing a special formula.

Angela, age 3, has Cerebral Palsy. Angela’s family needed assistance with purchasing Pedialyte.

Andrew, age 13, has Muscular Dystrophy. His family needed assistance in purchasing special formula. Angel’s family needed assistance purchasing Ensure for their daughter. Nathan, age 6, has Autism. His mom needed assistance purchasing pull ups while he continues to try to master potty training.

Devon, age 4, has Autism and a severe oral aversion requiring the placement of a feeding tube. The Emily Ann Griffin Foundation purchased a Blend-Tech blender to enable the family to tube feed Devon healthy foods.

Mekhi, age 2, has tracheomalacia and sleep apnea. Mekhi’s doctor felt that a window air conditioning unit would keep Mekhi more comfortable during the summer months. The Emily Ann Griffin Foundation purchased an air conditioning unit for her.

Antonio and Mason both have Autism, their families requested some sensory equipment for them which the foundation was happy to purchase.

Jorden, age 6, suffers from Rett’s Syndrome. Due to tremors, Jorden has difficulty eating. The Emily Ann Griffin Foundation purchased a special self-leveling spoon to assist with eating.

Johan, age 2, has congenital cataracts and suffers from infantile spasms. His teacher requested a baby swing for home use to help sooth Johan.

Preethi, age 4, has Cerebral Palsy. Preethi needed multiple pieces of equipment to assist her in her home. The Emily Ann Griffin Foundation was able to purchase all the equipment she needed.

Jase, age 3, has Krabbe Disease which is a progressive disorder of the nervous system. Jase’s family needed to purchase a special respiratory vest but was not able to afford it. The Emily Ann Griffin Foundation was able to purchase this item for Jase.

Sending Kids to Camp

The following children received financial assistance to attend camp last summer:

Gavin, age 12, who has Cerebral Palsy

Franco  who has Cerebral Palsy

Mohamed, age 8, has Autism

Maeve, age 11, who has Spastic Quadriplegia Cerebral Palsy

Keeping Kids Safe

Mekayla, age 17, has Lennonx-Gastaut Syndrome and Autism. The Emily Ann Griffin Foundation provided bed rails and a motion sensor to keep her safe when she has a seizure at night.

Addyson, age 2, has Leigh’s Disease. Her family requested a special supportive car seat to keep her safe while traveling.

Zoey, age 3, has Sturge-Webber Syndrome and Epilepsy. The Emily Ann Griffin Foundation purchased a special bath chair to provide the family with a safe option for bathing Zoey.

Johnny, age 3 and Asher, age 2, both received a “Splashy”. A “Splashy” provides extra support when bathing a child and can also be taken and used at the beach on family vacations.

Caden, age 3, has Spina Bifida and Hydrocephaly. The Emily Ann Griffin Foundation purchased a shower chair, so his family can safely bath him.

Seating Assistance

Anthony, age 2, has Cerebral Palsy. The Emily Ann Griffin Foundation purchased a P- Pod Postural Support System for him. A P-Pod Postural Support System is the perfect alternative seating solution and it is light and portable.

Evelyn, age 2, suffers from Hypoxic Ischemic Encephalopathy. And as a result, Evelyn suffers from neurologic overstimulation and is difficult to comfort. The Foundation purchased a Babocush for her. This special piece of equipment allows for swaddling with gentle vibration, a rhythmic heart beat and a rocking or swaying motion.

Titan, age 3, has Cerebral Palsy. The foundation purchased a supportive chair and tray system to allow him to sit up with support and more easily engage in his environment.

Kaleigh, age 1, suffers from an undiagnosed neurologic disorder that makes it very difficult to comfort her. The family needed a special baby swing, which the foundation purchased.

Thank You… to Area Businesses and Special Friends for their On-going Support

On April 18, The Emily Ann Griffin Foundation (along with three other worthy organizations) was given the opportunity to present to the Plymouth Canton Women’s Giving Circle. The Giving Circle provides assistance to organizations that address the needs of women and families in the greater Canton and Plymouth areas. Each organization at the April 18 meeting was given the opportunity to talk about their groups and how they positively impact the lives of women and families in our area. After the presentations, members of the Giving Circle donate $100 and vote on which organization should receive the donated funds. The Emily Ann Griffin Foundation was thrilled to receive the collected funds totalling more than $6300. Thank you to the Plymouth Canton Women’s Giving Circle and to all who donated. (At press time, we were unable to list the individuals who donated. These names will be included in our next newsletter.)

The Ann Arbor Star Chapter 317 Annual Heritage Ride once again raised money for The Emily Ann Griffin Foundation. This wonderful motorcycle group has raised over $27,000 for the Emily Ann Griffin Foundation

The Plattsburgh High School National Honor Society raised $800.00 for The Emily Ann Griffin Foundation.

The Livonia Bar Association donated the proceeds from their Annual Golf Outing to The Emily Ann Griffin Foundation.

The Emily Ann Griffin Foundation was a recipient of a grant from Eagles For Children. This is a wonderful foundation that participating country clubs join in each golf season. Golfers pledge a dollar amount for every eagle recorded at their respective club during the season. Meadowbrook Country Club gifted our foundation with $4,575.00. Thank you Dan and Janet Doyle for sponsoring The Emily Ann Griffin Foundation!

Each year the Chelsea Classic Cruisers host a car show and donate a portion of their proceeds to a local charity. This year they honored The Emily Ann Griffin Foundation with their donation.

The Emily Ann Griffin Foundation is now one of the charitable organizations participating in the Charity Motors, Inc. Car Donation Program. Donate your used car and designate the Emily Ann Griffin Foundation to receive the proceeds from the sale of your car. Please Call Charity Motors at 1-888-908-CARS. Thank you to Lew and Molly Newcomb for designating The Emily Ann Griffin Fiundation to receive the proceeds from the donation of their car to Charity Motors.

Thank you once again to Doyle and Associates for helping us apply for CFC funding and for providing our accounting needs.